At that exact point in time, my destiny became intertwined with theirs. The first thing that came to mind was that we needed to take Seryozhka to Ernst Muldashev at the Russian Center for Eye Plastic Surgery. I had faith that they would think of something to help. But getting him there would be difficult; we didn’t have a doctor’s referral for the center or a prior agreement with the clinic. We just knew that we had to do something. But my hope came true—at the clinic they decided to take out the hemangioma and make a prosthetic. The operation lasted six hours. During the operation it became clear that instead of an eye he had a tumor. But it wasn’t a problem—the tumor was benign. They performed plastic surgery on his face. But most importantly, we needed to find out if Seryozhka was in danger of being mentally handicapped. After appointments with the neurosurgeon and the psychotherapists, they came to this conclusion: “He will never be an astronaut, but otherwise, he’s as healthy as any other child.”
And thus began the humdrum life of a small boy. He grew quickly and started to talk and walk early. Once a year he and his mom traveled to the clinic, where they regularly performed plastic surgery and replaced his prosthetic eye. It appeared that everything was great and that the prognosis of the local “stars of medicine” was incorrect. Mom was always around, dedicating all her time to Seryozhka. But only I know what it cost her to endure the unprofessionalism of the local doctors, their heartlessness, and most importantly, their abominably incorrect behavior when they should have written a referral for the operation at the clinic. But she survived it all. She and I talked for a long time in the evenings, and I was constantly trying to convince her to have Seryozhka study English and music, and that he’s a talented child. I was sure that if God would deprive someone of proper physical development, He would certainly make up for it with unusual talent. Seryozhka is now eleven years old. He’s inquisitive and very active. He studies English, attends musical school, and is a great student; but most importantly, he’s not ashamed of his outward appearance. Although there are sometimes conflicts—children will tease—Seryozhka has learned to live with it and doesn’t feel “different” amongst his peers. Yes, he will likely have countless more plastic surgeries, each one causing him terrible pain and causing his mother unbearable suffering for her child’s suffering, but they are together and they have made null and void the verdict of the so-called “doctors.”
Карапетян Сюзанна/Karapetyan Sjuzanna
Диагноз: Дефект межжелудочковой перегородки
Diagnosis: Defect of the interventricular septum.
Стадниченко Таисья/Stadnichenko Taisiya
Диагноз: Двусторонняя сенсоневральная глухота на оба уха, состояние после операции кохлеарной имплантации.
Diagnosis: bilateral sensorineural deafness, condition after cochlear implantation.
Екатерина Смирнова/Ekaterina Smirnova
Диагноз: Диспластический правосторонний грудной сколиоз IV степени
Diagnosis: dysontogenetic thoracic righ-sided scoliosis of the 4th degree
Мухиддин-Зода Тахир\Muhiddin-Zoda Tahir
Диагноз: Саркома Юинга затылочной кости с интракраниальным ростом. Окклюзионная гидроцефалия. Метастазирование опухоли в вещество головного мозга. Бульбарный паралич, носитель гастростомы.
Diagnosis: Juing’s sarcoma of occipital bone with intracranial growth. Obstructive hydrocephalus. Dissemination of tumor in brain. Bulbar paralysis, gastrostomy user.
Гунгер Виктор\Gunger Victor
Диагноз: Двусторонняя микротия ушных раковин, двусторонняя атрезия слуховых проходов, кондуктивная тугоухость 3 степени
Diagnosis: bilateral microtia, atresia of acoustic meatus, bilateral conductive hearing loss of the 3rd degree.